National Health Interview Survey (NHIS) 2016

Investigators: Centers for Disease Control and Prevention (CDC)

The National Health Interview Survey (NHIS) is the principal source of information on the health of the civilian noninstitutionalized population of the United States and is one of the major data collection programs of the National Center for Health Statistics (NCHS). The main objective of the NHIS is to monitor the health of the United States population through the collection and analysis of data on a broad range of health topics. A major strength of this survey lies in the ability to categorize these health characteristics by many demographic and socioeconomic characteristics. NHIS data are used widely throughout the Department of Health and Human Services (HHS) to monitor trends in illness and disability and to track progress toward achieving national health objectives. The data are also used by the public health research community for epidemiologic and policy analysis of such timely issues as characterizing those with various health problems, determining barriers to accessing and using appropriate health care, and evaluating Federal health programs. The NHIS questionnaire consists of two parts: (1) a set of basic health and demographic items (known as the Core questionnaire), and (2) Supplements. The Core questions remain largely unchanged from year to year and allow for trends analysis and for data from more than one year to be pooled to increase sample size for analytic purposes. The Core contains four major components: Household, Family, Sample Adult, and Sample Child. The Household component collects limited demographic information on all of the individuals living in a particular house. The Family component verifies and collects additional demographic information on each member from each family in the house and collects data on topics including health status and limitations, injuries, healthcare access and utilization, health insurance, and income and assets. The Family Core component allows the NHIS to serve as a sampling frame for additional integrated surveys as needed. From each family in the NHIS, one sample adult and one sample child (if any children are present) are randomly selected and information on each is collected with the Sample Adult Core and the Sample Child Core questionnaires. Because some health issues are different for children and adults, these two questionnaires differ in some items but both collect basic information on health status, health care services, and health behaviors.

National Health Interview Survey (NHIS) 2017

Investigators: Centers for Disease Control and Prevention (CDC)

The National Health Interview Survey (NHIS) is the principal source of information on the health of the civilian noninstitutionalized population of the United States and is one of the major data collection programs of the National Center for Health Statistics (NCHS). The main objective of the NHIS is to monitor the health of the United States population through the collection and analysis of data on a broad range of health topics. A major strength of this survey lies in the ability to categorize these health characteristics by many demographic and socioeconomic characteristics. NHIS data are used widely throughout the Department of Health and Human Services (HHS) to monitor trends in illness and disability and to track progress toward achieving national health objectives. The data are also used by the public health research community for epidemiologic and policy analysis of such timely issues as characterizing those with various health problems, determining barriers to accessing and using appropriate health care, and evaluating Federal health programs. The NHIS questionnaire consists of two parts: (1) a set of basic health and demographic items (known as the Core questionnaire), and (2) Supplements. The Core questions remain largely unchanged from year to year and allow for trends analysis and for data from more than one year to be pooled to increase sample size for analytic purposes. The Core contains four major components: Household, Family, Sample Adult, and Sample Child. The Household component collects limited demographic information on all of the individuals living in a particular house. The Family component verifies and collects additional demographic information on each member from each family in the house and collects data on topics including health status and limitations, injuries, healthcare access and utilization, health insurance, and income and assets. The Family Core component allows the NHIS to serve as a sampling frame for additional integrated surveys as needed. From each family in the NHIS, one sample adult and one sample child (if any children are present) are randomly selected and information on each is collected with the Sample Adult Core and the Sample Child Core questionnaires. Because some health issues are different for children and adults, these two questionnaires differ in some items but both collect basic information on health status, health care services, and health behaviors.

National Health Interview Survey (NHIS) 2015

Investigators: Centers for Disease Control and Prevention (CDC)

The National Health Interview Survey (NHIS) is the principal source of information on the health of the civilian noninstitutionalized population of the United States and is one of the major data collection programs of the National Center for Health Statistics (NCHS). The main objective of the NHIS is to monitor the health of the United States population through the collection and analysis of data on a broad range of health topics. A major strength of this survey lies in the ability to categorize these health characteristics by many demographic and socioeconomic characteristics. NHIS data are used widely throughout the Department of Health and Human Services (HHS) to monitor trends in illness and disability and to track progress toward achieving national health objectives. The data are also used by the public health research community for epidemiologic and policy analysis of such timely issues as characterizing those with various health problems, determining barriers to accessing and using appropriate health care, and evaluating Federal health programs. The NHIS questionnaire consists of two parts: (1) a set of basic health and demographic items (known as the Core questionnaire), and (2) Supplements. The Core questions remain largely unchanged from year to year and allow for trends analysis and for data from more than one year to be pooled to increase sample size for analytic purposes. The Core contains four major components: Household, Family, Sample Adult, and Sample Child. The Household component collects limited demographic information on all of the individuals living in a particular house. The Family component verifies and collects additional demographic information on each member from each family in the house and collects data on topics including health status and limitations, injuries, healthcare access and utilization, health insurance, and income and assets. The Family Core component allows the NHIS to serve as a sampling frame for additional integrated surveys as needed. From each family in the NHIS, one sample adult and one sample child (if any children are present) are randomly selected and information on each is collected with the Sample Adult Core and the Sample Child Core questionnaires. Because some health issues are different for children and adults, these two questionnaires differ in some items but both collect basic information on health status, health care services, and health behaviors.

Annual Survey of Deaf and Hard-of-Hearing Children and Youth, 1975-1994

Investigators: Arthur N. Schildroth, Thomas E. Allen, Sue A. Hotto, Kay H. Lam, and John K.C. Woo

The Annual Survey of Deaf and Hard-of-Hearing Children and Youth, 1975-1994 was administered by the Center for Assessment and Demographic Studies (CADS) at Gallaudet University, Washington, DC. The project, a nationwide, longitudinal survey conducted every year since 1968, tracks the educational and demographic characteristics of deaf and hard-of-hearing students receiving special education services in schools throughout the United States. The purpose of the study has been to determine the size of the special education deaf and hard-of-hearing population of the United States and to describe its characteristics in ways that are useful to educators, program planners, legislators, and other researchers. The survey has played an important role in providing quality data for the discussion and debates leading to improvements in the field of education for these children. Educators have used Annual Survey data to provide national, state, and local level administrators, legislators, and the public at large with information about national needs and services, about changes taking place in the educational services in which these students are enrolled, and about various trends in their education. The Annual Survey data base includes approximately 65% of all deaf and hard-of-hearing children receiving special educational services in the United States.

Rehabilitation Services Administration-Social Security Administration Data Link, 1988

Investigators: Rehabilitation Services Administration, Social Security Administration

The State-Federal Program of Vocational Rehabilitation provides individualized vocational rehabilitation services to persons with disabilities to help them attain, maintain, or regain employment. In the course of providing these services, State Rehabilitation Agencies maintain case records on all of the individuals requesting services under the Rehabilitation Act of 1973 as amended. In an effort to improve program evaluation through the exchange of statistical information, the Department of Education's Rehabilitation Services Administration (RSA) and the Social Security Administration (SSA) have established a Data Link. The continuing exchange of RSA-SSA Data was established in law with Section 141 of the Rehabilitation Act Amendments of 1992. The merging of records of these two agencies has advanced the understanding of the rehabilitation experience of disabled persons by providing their employment, earnings, and beneficiary history following the receipt of services through the State-Federal Program of Vocational Rehabilitation. The RSA-SSA Data Link allows researchers to examine key issues regarding rehabilitation, including whether or not rehabilitated persons remain employed and for how long; the earnings of rehabilitated persons in the years following case closure; how earnings of rehabilitated persons compare to those of persons who could not be rehabilitated or who were not accepted for rehabilitation services; how well severely disabled individuals responded to their rehabilitation experience compared to their non-severely disabled counterparts; how frequently rehabilitated persons become publicly supported; whether or not rehabilitated persons are less likely to require public support than individuals who could not be rehabilitated or were not accepted for rehabilitation services; and the work histories of disabled persons in the years prior to their rehabilitative experience.

National Pediatric Trauma Registry, 1988-1994

Investigators: Carla DiScala and Bruce M. Gans

The National Pediatric Trauma Registry (NPTR) was formed to describe pediatric trauma in terms of its etiology, methods of treatment, and functional outcomes. Centered at Tufts-New England School of Medicine, and endorsed by the American Pediatric Surgical Association, the NPTR data archived here represent 45,333 children under age 19 who were admitted to one of 66 American or Canadian trauma centers between October 1988 and December 1994. The NPTR has five aims: (1) to document causes and outcomes of pediatric trauma serious enough to require hospitalization; (2) to describe resulting impairments; (3) to assess efficacy of acute intervention; (4) to estimate needs for rehabilitation services; and (5) to identify areas for preventive intervention. The National Pediatric Trauma Registry has a unique focus on the functional status of surviving children discharged from acute care. For example, nine specific domains of individual functioning are measured and included in this dataset. These domains include vision, hearing, speech, self-feeding, bathing, dressing, walking, cognition, and behavior. Moreover, 267 variables capture the duration and sequencing of children's experience with trauma, trauma severity, treatment and treatment outcomes.

Next Generation of Upper-Limb Prostheses, 1994

Investigators: William H. Donovan, Diane J. Atkins, Denise C.Y. Heard

The Next Generation of Upper-Limb Prostheses, 1994, is based on a study entitled The Next Generation of Myoelectric Prostheses, 1994, which established the TIRR National Upper Limb Amputee Data Base (copyright 1994, TIRR). The project was conducted by The Institute for Rehabilitation and Research (TIRR) from September, 1992 through November, 1994. This epidemiological study established a national data base on adults and children with upper limb loss and evaluated user perceptions of upper-limb prosthetic devices regarding: 1) costs, maintenance, and sensory feedback, 2) activities which can and cannot be done with available prosthetic technology, and 3) areas identified as most important for improvement in prosthetic devices. The TIRR National Upper-Limb Amputee Data Base is perhaps the most extensive survey ever conducted of upper limb amputees in North America concerning their prosthetic requirements. The archived study consists of one aggregate data file for four surveys (a screener survey and three longer surveys specific to prosthetic type). The one page screener survey includes data from 2,477 adults with upper-limb prosthetic devices or parents of children with upper-limb prosthetic devices.

School to Work Transition Survey of Deaf Youth, 1986-1992

Investigators: Thomas E. Allen, Brenda W. Rawlings, Arthur N. Schildroth, and Kay H. Lam

The School to Work Transition Survey of Deaf Youth, 1986-1992 was administered by the Center for Assessment and Demographic Studies (CADS) at Gallaudet University, Washington, DC. The project examined factors in the transition of deaf youth from high school to the work place. The transition of deaf youth from high school to their postsecondary careers is a major concern of educators and rehabilitation professionals working with this segment of the population. The student sample was taken from the ongoing CADS Annual Survey of Deaf and Hard-of- Hearing Children and Youth. The student sample was limited to deaf students ages 16-22, with a hearing threshold greater than 70 dB in the better ear. The student sample was drawn from a national database containing demographic, audiological, and educational information, representing the majority of students in America with significant levels of hearing loss. Self-administered questionnaires were distributed in 1987 to deaf and hard-of-hearing students; parents of the students, and their high school counselors. The study also included three follow up Student and Parent surveys administered between 1988 and 1992, as well as results from the 1983 Stanford Achievement Test. The archived study includes 469 variables across 6,475 cases.

Study of Outpatient Physical Therapy Practices, 1991

Investigators: Alan Jette

During 1989 and 1990, Mathematica Policy Research, Inc. (MPR) conducted a national survey of facilities that provide outpatient physical therapy services. The 1991 Study of Outpatient Physical Therapy Practices (SOPTP), was conducted to provide the American Physical Therapy Association (APTA) with a description of clients who have received treatment in outpatient settings. These settings include acute care hospitals, rehabilitation hospitals, private physical therapy practices (PPTs), and physicians offices. Prior to this study, no single source or combination of sources could provide detailed and accurate data on what physical therapists do in relation to treatment and evaluation. This study was designed to provide reliable estimates of the volume, types, duration, and charges for physical therapy services provided in different outpatient settings. The study was conducted annually over three years, with each wave in the field for 12 months to control for unforeseen seasonal affects. The first year was considered a pilot study. The second and third years of data collection are archived here. Facilities were randomly selected separately for each study year. Data are weighted to correct for sampling biases. Sampled facilities completed a 20 minute telephone interview. Each facility was then asked to provide data on a small number of recently discharged clients. Sociometrics has archived these data as two separate datasets: facility-level data and patient level data, which can be merged by a facility identifying variable into a single hierarchical dataset.

Infant Health and Development Program (IHDP): An Early Intervention Program for Low Birth Weight Premature Infants

Investigators: Craig T. Ramey, PhD, Donna M. Bryant, PhD, Joseph Sparling, PhD & Barbara H. Wasik, PhD

The Infant Health and Development Program (IHDP) was developed to enhance the cognitive, behavioral, and health status of low birth weight (LBW), premature infants. Between birth of a premature child and the age of three, program families received: 1) pediatric follow-up, 2) home visits, 3) parent support groups, and 4) a systematic educational program provided in specialized child developmental centers. The purpose of this early intervention program is to prevent later developmental problems. As such the child is the primary intervention target, although a parent (or other primary caregiver) is an essential participant in various program components. The IHDP curriculum is both center and home-based and includes activities to foster child functioning and enhance primary care giver child-rearing skills. At the end of the program, an experimental evaluation showed that IHDP had positively impacted cognitive and motor skills in participating children, particularly those from the most at-risk families and those who had been born at the "heavier" side of the low birth weight range (2001 to 2500 grams). Click here to view more detailed information on this program.