National Health Interview Survey on Disability, Complete Phase I, 1994-1995

Investigators: National Center for Health Statistics

Since 1957, the National Center for Health Statistics (NCHS) annually conducts a National Health Interview Survey (NHIS), which consists of a core questionnaire and supplements. The core questionnaire is aimed at a continuous assessment and analysis of health trends in the United States, and its topics--basic health, socioeconomic, and demographic data--do not vary much across years. Each year, one or more supplements are added to this core questionnaire to reflect public health data needs. Recent supplement topics included cancer risk factors, youth risk behaviors, knowledge and attitudes about AIDS, and child health. The 1994-1995 National Health Interview Survey on Disability (NHIS-D) was one of the supplements to the 1994 and 1995 NHIS core questionnaires. Due to the low prevalence of disabilities among noninstitutionalized civilians, the NHIS-D was collected over two years, from January 1994 to December 1995. The NHIS-D was designed to meet the need for data on the prevalence and nature of disability in the U.S. since the establishment of the Americans with Disabilities Act (ADA) in 1990. One of the main objectives of the NHIS-D was to develop a survey instrument that would provide useful disability measures while accommodating social, administrative, and medical considerations, so that the data could be analyzed by a variety of agencies and programs. Also, the NHIS-D was designed to collect data to facilitate public health policy and provide descriptive baseline statistics on the effects of disabilities. The NHIS-D, Phase I questionnaire was administered at the same time as the NHIS core questionnaire and the other supplements. Given the limited amount of time allocated for the disability supplement, the NCHS decided to conduct a two-phase data collection with two separate questionnaires on disability. Eligibility for the NHIS-D, Phase II was based on the responses to the Phase I disability supplement, as well as the core questionnaire topics on activity limitation, and the family resource supplement regarding the receipt of disability benefits. The Phase II survey began in August 1994 with sample numbers of 20,410 in 1994 and 12,378 in 1995, and it was completed in 1997. This follow-up survey data on disability (1994-1995 NHIS-D, Phase II) will be archived in RADIUS during fall of 1998 and will include ID variables for linking Phase I and II datasets. The sample size for Phase I is 202,560 (107,469 in 1994 and 95,091 in 1995). The decrease in sample size for the 1995 survey reflects a change in the sample design as well as the federal government furlough, which reduced the time for data collection.

National Health Interview Survey on Disability, Complete Phase II, 1994-1995

Investigators: National Center for Health Statistics

Since 1957, the National Center for Health Statistics (NCHS) annually conducts a National Health Interview Survey (NHIS) of the U.S. noninstitutionalized civilian population, which consists of approximately 122,000 individuals in 48,000 households. The NHIS consists of a core questionnaire and supplements. The core questionnaire is aimed at a continuous assessment and analysis of health trends in the United States, and its topics--including basic health, socioeconomic, and demographic data--do not vary much across years. Each year, one or more supplements are added to this core questionnaire to reflect public health data needs. Recent supplement topics included cancer risk factors, youth risk behaviors, knowledge and attitudes about AIDS, and child health. The 1994-1995 National Health Interview Survey on Disability (NHIS-D) was one of the supplements to the 1994 and 1995 NHIS core questionnaires. Due to the low prevalence of disabilities among noninstitutionalized civilians, the NHIS-D was collected over two years, from January 1994 to December 1995. The NHIS-D was designed to meet the need for data on the prevalence and nature of disability in the U.S. since the establishment of the Americans with Disabilities Act (ADA) in 1990. One of the main objectives of the NHIS-D was to develop a survey instrument that would provide useful disability measures while accommodating social, administrative, and medical considerations, so that the data could be analyzed by a variety of agencies and programs. Also, the NHISD was designed to collect data to facilitate public health policy and provide descriptive baseline statistics on the effects of disabilities. The NHIS-D, Phase I questionnaire was administered at the same time as the NHIS core questionnaire and the other supplements. Given the limited amount of time allocated for the disability supplement, the NCHS decided to conduct a two-phase data collection with two separate questionnaires on disability. Eligibility for the NHIS-D, Phase II was based on the responses to the Phase I disability supplement, as well as the core questionnaire topics on activity limitation, and the family resource supplement regarding the receipt of disability benefits. The complete--merged 1994/95--NHIS-D Phase I data and documentation are available as RADIUS dataset 35-36. The Phase II interviews were conducted six to eight months after the Phase I interviews, beginning in August 1994 and ending in 1997. Interviews using the Adult questionnaire were conducted with the individual identified from the Phase I interview whenever possible. The respondent for the Child component was the parent or the adult in the household who knew the most about the child's health. The NHIS-D, Phase II Child survey includes information on utilization and the need for services, functional assessment, and the impact of the child's disability on the family. The 1994 and 1995 Child surveys were merged and archived by RADIUS staff as Dataset 37-38. Dataset 37-38 contains 1,199 variables and 6,983 cases. The Adult questionnaire obtained extensive information on issues such as employment, transportation needs, personal assistance needs, use of services and benefits, and participation in social activities. The 1994 and 1995 Adult surveys were merged and archived by RADIUS staff as Dataset 39-41. Dataset 39-41 contains 2,534 variables and 25,805 cases. An additional Outcome file, archived as RADIUS Dataset 42, provides information on the response or non-response of Phase I respondents eligible for either the Adult or Child phase II. Dataset 42 contains 4 variables and 202,560 cases. Identification variables are available to link NHIS-D respondents between Phases (I/II) as well as within households (Child/Adult), and to related government-sponsored data collections.

National Household Survey on Drug Abuse, 1990

Investigators: Joseph Gfroerer, Joseph Gustin, Thomas Virag, Ralph Folsom & J. Valley Rachal

The 1990 National Household Survey on Drug Abuse (NHSDA) is the tenth in a series of cross-sectional studies, which began in 1971, designed to measure the prevalence and correlates of drug use in the United States household population aged 12 and over. The 1990 NHSDA was sponsored by the National Institute of Drug Abuse (NIDA). Researchers from the Research Triangle Institute in Research Triangle Park, North Carolina, directed the 1990 study. The basic sample design involved several selection stages; these were the selection of Primary Sampling Units (PSUs, e.g. counties), area segments (e.g., blocks or enumeration districts) within these PSUs, sample households within area segments, one or two (if any) age group domains within sample households, and a person within selected age group domains. Interviewers administered questionnaires in-person. All samples were done using probability methods. Topics covered in the 1990 NHSDA include tobacco, alcohol, and illicit drug use; consequences of various drugs; health condition; and general demographic information.

National Household Survey on Drug Abuse, 1991

Investigators: Joseph Gfroerer, Joseph Gustin, Thomas Virag, Ralph Folsom & J. Valley Rachal

The NHSDA is the only study that produces estimates of drug use among members of the household population the United States. The survey is appropriate for estimating prevalence rates for different drugs, since much drug use would not ordinarily come to the attention of administrative, medical, or correctional authorities and therefore would not be included in official statistics. In-person interviews with a large national probability sample seem to be the best way to estimate drug use in virtually the entire population of the United States. Topics covered in the 1991 NHSDA include tobacco, alcohol, and illicit drug use; consequences of various drugs; health condition; treatment for drug use; illegal activities; and use of anabolic steroids. Also, sets of questions regarding insurance and personal and family income sources and amounts were expanded in comparison to previous surveys. The 1991 survey includes 1,283 variables. The content of the NHSDA changes slightly from year to year. Changes made over the course of the 1990 and 1991 surveys include changes regarding sampling methods, sample populations, and the deletion and addition of variables. The 1991 NHSDA is the first NHSDA to sample from Alaska and Hawaii in addition to the contiguous states. Furthermore, unlike previous surveys, residents of non-institutional group quarters (e.g., college dormitories, group homes, civilians dwelling on military installations) and persons with no permanent residence (homeless people and residents of single rooms in hotels) were sampled in the 1991 NHSDA.

National Longitudinal Study of Adolescent Health, Waves I & II (ADD Health), 1994-1996

Investigators: J. Richard Udry and Peter Bearman

The National Longitudinal Survey of Adolescent Health (Add Health) was mandated by Congress to collect data for the purpose of measuring the impact of social environment on adolescent health. It examines the general health and well-being of adolescents in the United States, including, with respect to these adolescents, (1) the behaviors that promote health and the behaviors that are detrimental to health; and (2) the influence on health of factors particular to the communities in which adolescents reside. Some of the dependent variables include diet and nutrition, eating disorders, depression, violent behavior, intentional injury, unintentional injury, suicide, exercise, health service use, and health insurance coverage. Add Health data were collected in two waves. Wave I (collected between September, 1994 and December, 1995) includes three sets of data available for public use. The in-school data was collected from students grades 7 through 12 and consists of responses to questions about social and demographic characteristics of the respondents, the education and occupation of parents, household structure, risk behaviors, expectations for the future, self-esteem, health status, friendships, and school-year extracurricular activities. The in-home dataset consists of responses to a detailed and lengthy interview of a subset of adolescents who were selected from the rosters of the sampled schools. Finally, the Parent data were collected from one parent or parent-figure for each In-home sampled student. Wave II of the Add Health data (collected from April, 1996 through August, 1996) consists of the in-home adolescent follow-up interviews.

National Longitudinal Survey of Youth (NLSY), 1979-1982: Selected Variables (Waves 1-4), and Supplementary Variables

Investigators: Ohio State University

The NLSY is an ongoing study of 12,686 young women and men aged 14-21 in 1979. The study sample includes an oversampling of blacks and Hispanics; as a result, this Data Set will be particularly valuable for analyses of these subgroups. The NLSY participants have been surveyed annually since 1979. The DAAPPP file contains data from the first four survey waves, 1979-1982. Data from subsequent waves have been added to DAAPPP as they became available. This file contains an extract of approximately 2,000 of the NLSY variables, including the following: (1) complete childbearing histories (including age, sex, and current residence) of all children, for both males and females in the sample; (2) data on pregnancy losses, including timing and reason for loss; (3) data on both current and anticipated childcare arrangements, including costs of childcare; and (4) data on contraceptive usage both before and after pregnancies. Note for users of DAAPPP Data Sets #01-B1DAAPPP data sets 01 through B1 are comprised of a User's Guide, SPSS syntax files (*.SPS or *.SPX) and raw data files only. Most of these datasets contain SPSS syntax files that use Job Control Language (JCL) from 1980s versions of SPSS-X. Because the syntax is old, the syntax files require editing to conform to the current syntax standards used by SPSS/Windows or SPSS/Unix. If you require technical assistance in using or editing these syntax files, please contact Sociometrics' Data Support Group at 800.846.3475 or socio@socio.com.

National Longitudinal Survey of Youth 1979 Children and Young Adults 2014 (NLSY-79-CYA)

Investigators: U.S. Bureau of Labor Statistics

The NLSY79 Child and Young Adult (NLSY79-CYA) cohort is a longitudinal project that follows the biological children of the women in the NLSY79. The NLSY79 itself is a longitudinal project that follows the lives of a sample of American youth born between 1957-64. As of 2014, more than 10,000 children have been interviewed in at least one survey round of the NLSY79-CYA. To date, a total of 11,512 children have been identified as born to interviewed NLSY79 mothers. This dataset includes data collected in 2014. The NLSY79-CYA 2014 includes variables on educational attainment, school enrollment, the school-to-work transition process, work history, employment, income, household composition, demographic information, neighborhood characteristics, family background, parenting, marriage and cohabitation, fertility, sexual activity, health, attitudes, expectations, pro-social behaviors, crime, substance use, and more. In total, the NLSY79-CYA contains 7240 variables.

National Longitudinal Transition Study of Special Education Students, 1987-1991

Investigators: Stanford Research Institute, Mary Wagner, Kathy Valdes, and Associates

In 1983, the U.S. Congress mandated a national study of special education students' experiences with transition out of school and into adult life. The study was conducted to provide practitioners, policy makers, researchers, and other special education affiliates with information that describes the transition that disabled youth make from secondary school to early adulthood. It was further to identify factors that contribute to youths' effective transition from secondary school to employment, further training or education, and independent living. The Office of Special Education Programs (OSEP) of the U.S. Department of Education contracted with SRI International to develop a research design, craft and field test data collection instruments, and select a sample of students for a study that would meet the congressional mandate. In April 1987, under a separate contract, SRI began data collection for The National Longitudinal Transition Study of Special Education Students, 1987-1991 (NLTS). The sample for the NLTS involves more than 8,000 youth aged 13 or older and in grade seven or higher. This sample represents the national population of secondary special education students in the 1985-86 school year. Furthermore, the sample was drawn so that findings generalize to students in secondary special education in 1985-1986, both as a whole and separately for students in each of the 11 federal special education disability categories. Data were first gathered in 1987 (referred to as Wave 1) and again in 1990-91 (referred to as Wave 2). Therefore, youths' patterns of experiences through secondary school and into their early adult years could be charted over time. In 1989, additional data were collected in two "substudies" for particular sets of youth within the primary sample. The "school program" substudy was undertaken to examine in greater detail the experiences of youth during their entire secondary school career. To examine the experiences of youth in their first few years after secondary school, the "exiter" substudy consisted of telephone interviews regarding more than 800 youth. These youth were already out of secondary school at the time of the Wave 1 interview.

National Pediatric Trauma Registry, 1988-1994

Investigators: Carla DiScala and Bruce M. Gans

The National Pediatric Trauma Registry (NPTR) was formed to describe pediatric trauma in terms of its etiology, methods of treatment, and functional outcomes. Centered at Tufts-New England School of Medicine, and endorsed by the American Pediatric Surgical Association, the NPTR data archived here represent 45,333 children under age 19 who were admitted to one of 66 American or Canadian trauma centers between October 1988 and December 1994. The NPTR has five aims: (1) to document causes and outcomes of pediatric trauma serious enough to require hospitalization; (2) to describe resulting impairments; (3) to assess efficacy of acute intervention; (4) to estimate needs for rehabilitation services; and (5) to identify areas for preventive intervention. The National Pediatric Trauma Registry has a unique focus on the functional status of surviving children discharged from acute care. For example, nine specific domains of individual functioning are measured and included in this dataset. These domains include vision, hearing, speech, self-feeding, bathing, dressing, walking, cognition, and behavior. Moreover, 267 variables capture the duration and sequencing of children's experience with trauma, trauma severity, treatment and treatment outcomes.

National School-based Youth Risk Behavior Survey, 2003

Investigators: Centers for Disease Control and Prevention (CDC)

The Youth Risk Behavior Surveillance System (YRBSS) is an epidemiologic surveillance system that was established by the Centers for Disease Control and Prevention (CDC) to monitor the prevalence of youth behaviors that most influence health. The 2003 national school-based Youth Risk Behavior Survey (YRBS) is one component of the YRBSS. The YRBS focuses on priority health-risk behaviors established during youth that result in the most significant mortality, morbidity, disability, and social problems during both youth and adulthood. These include: tobacco use; unhealthy dietary behaviors; inadequate physical activity; alcohol and other drug use; sexual behaviors that may result in HIV infection or other sexually transmitted diseases; unintended pregnancies; and behaviors that may result in violence and unintentional injuries, as well as overweight. The results from the YRBS will be used by CDC to (1) monitor how priority health-risk behaviors among high school students (grades 9-12) increase, decrease, or remain the same over time; (2) evaluate the impact of broad national, state, and local efforts to prevent priority health-risk behaviors; and (3) monitor progress in achieving three leading health indicators and 15 Healthy People 2010 national health objectives.