Disability

The Research Archive on Disability in the U.S., funded by the National Institute of Child Health and Human Development, facilitates access to the best data sets on the prevalence, incidence, correlates, and consequences of disability in the U.S. These data sets permit analyses on topics such as: the incidence and prevalence of specific diseases, disorders, and impairments; functional limitations across a variety of specific organ systems; disabilities in relation to major life roles and activities; societal limitations including physical, attitudinal, and economical barriers that restrict full participation in society; psychosocial and interpersonal factors such as coping with stress, sexuality, feelings of control and productivity, quality of life, and family relations and support; health care and rehabilitation issues such as medical costs, coverage, and service utilization.

Individual Studies in the Disability Collection

Deaf and Hard-of-Hearing Children and Youth

Annual Survey of Deaf and Hard-of-Hearing Children and Youth, 1975-1994
Investigators: Arthur N. Schildroth, Thomas E. Allen, Sue A. Hotto, Kay H. Lam, & John K.C. Woo
The purpose of this study was to determine the size of the special education deaf and hard-of-hearing population of the United States and to describe its characteristics in ways that are useful to educators, program planners, legislators, and other researchers.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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ICD Survey of Disabled Americans

1986 ICD Survey of Disabled Americans: Bringing Disabled Americans into the Mainstream
Investigators: International Center for the Disabled
This study addressed what it means to be disabled in America by asking a wide range of disabled individuals about the impact of disability on the quality of their lives, their work, social life, daily activities, education, and personal life.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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ICD Employing Disabled Americans

1986 ICD Survey: Employing Disabled Americans
Investigators: The International Center for the Disabled
This study focused on several aspects of work and disability including: opinions and barriers to hiring persons with disabilities, workplace policies, comparisons between non-disabled and disabled employees, and suggestions for improving occupational environments, policies, and hiring practices.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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Medical Outcomes Study

Medical Outcomes Study, 1986-1992
Investigators: Alvin R. Tarlov, John E. Ware, Jr., Kenneth B. Wells, Anita L. Stewart, Cathy D. Sherbourne, Ron D. Hays, William H. Rogers, Sheldon Greenfield, & Sandra H. Berry
This study provides data on the impact of chronic diseases on patient well-being, medical care, changes in health conditions over time, and outcomes in terms of care, provider specialty, style of practice, and other factors that influence utilization of health care resources.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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National Health Interview on Disability

1994-1995 National Health Interview Survey on Disability, Complete Phase II
Investigators: National Center for Health Statistics
This study collected specific data on service use and expenditures as well as aspects of daily life of people with disabilities and includes a child survey with information on utilization and the need for services, functional assessment, and the impact of the child's disability on the family.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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National Health Interview on Disability

1994-1995 National Health Interview Survey on Disability, Complete Phase I
Investigators: National Center for Health Statistics
This study gathered data on the prevalence and conditions of disability, and demographic, socio-economic, health care, health insurance, and program characteristics of people with or without disabilities.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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Longitudinal Transition Study of Special Education Students

National Longitudinal Transition Study of Special Education Students, 1987-1991
Investigators: Stanford Research Institute: Mary Wagner, Kathy Valdes, and Associates
The study was conducted to provide practitioners, policy makers, researchers, and other special education affiliates with information that describes the transition that disabled youth make from secondary school to early adulthood.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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Maternal and Infant Health Follow-up Survey

1991 National Maternal and Infant Health Follow-up Survey
Investigators: National Center for Health Statistics
This study examines such factors as child health status and development, the effects of low birth weight, use of federal programs, child safety, child injury, child care, pediatric care, maternal health, sociodemographic characteristics, acute and chronic illness, and health insurance.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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Maternal and Infant Health Survey

1988 National Maternal and Infant Health Survey
Investigators: National Center for Health Statistics
This study examined child health status and development, use of federal programs, child safety, child injury, child care, pediatric care, maternal health, socio-demographic characteristics, acute and chronic illness, and health insurance.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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NOD Americans with Disabilities

1998 NOD/Harris Survey of Americans with Disabilities
Investigators: The National Organization on Disability
This study addressed disabled persons' self-perceptions, how their lives have changed in the past decade, what their experiences have been with employment, education, social life, what they thought must be done to increase their participation in the mainstream of American society.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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NOD Americans with Disabilities

1994 NOD Survey of Americans with Disabilities
Investigators: The National Organization on Disability
This study assessed changes among the disabled in social attitudes and experiences, social activities, and employment opportunities, along with the effects of religion, and the impact of technology and computers that aid disabled people.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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NOD Public Attitudes Toward People with Disabilities

1991 NOD Survey of Public Attitudes Toward People with Disabilities
Investigators: The National Organization on Disability
This study assessed what the American public believed about disabled people and interactions with them, with the aim of understanding of what the public knows about people with disabilities, how it feels about them and the way they are treated, and what should be done to help open up more opportunities for fuller participation in all aspects of life.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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Pediatric Trauma Registry

National Pediatric Trauma Registry, 1988-1994
Investigators: Carla DiScala and Bruce M. Gans
This Registry was formed to study the etiology of pediatric trauma and its consequences and has a unique focus on the functional status of surviving children discharged from acute care.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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Sexuality Issues Women with Physical Disabilities

1994 National Survey of Sexuality Issues among Women with Physical Disabilities
Investigators: Margaret A. Nosek
This study focuses on a broad range of sexuality issues facing women with physical disabilities.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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Next Genration of Upper-Limb Prostheses

The Next Generation of Upper-Limb Prostheses, 1994
Investigators: William H. Donovan, Diane J. Atins, Denise C.Y. Heard
This epidemiological study established a national data base on adults and children with upper limb loss and evaluated user perceptions of upper-limb prosthetic devices regarding costs, maintenance, and sensory feedback, activities which can and cannot be done with available prosthetic technology, and areas identified as most important for improvement in prosthetic devices.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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Rehab Services Admin Social Security Admin Data Link

Rehabilitation Services Administration-Social Security Administration Data Link, 1980-1988
Investigators: Rehabilitation Services Administration, and Social Security Administration
This study examined key issues regarding rehabilitation, including whether or not rehabilitated persons remain employed and for how long; earnings; rehabilitation experience; public support; and work histories.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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School-to-Work Deaf Youth

School-to-Work Transition Survey of Deaf Youth, 1986-1992
Investigators: Thomas E. Allen, Brenda W. Rawlings, Arthur N. Schildroth, and Kay H. Lam
This study examined factors in the transition of deaf youth from high school to the work place.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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Outpatient Physical Therapy Practices

1991 Study of Outpatient Physical Therapy Practices
Investigators: Alan Jette
This study was designed to provide reliable estimates of the volume, types, duration, and charges for physical therapy services provided in different outpatient settings.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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SIPP Core and Disability Modules

Survey of Income and Program Participation Core and Disability Modules, 1992/1993
Investigators: Bureau of Census, Jack McNeil
This study provides detailed income and other economic resource distribution information for the U.S. population.
Formats: Download ($195), CD-ROM ($225), SSEDL (subscription)
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